I’ve been lucky to be able to draw inspiration and support from a number of friends, family members, and professors; one primary and consistent source has been my father. Two of his lessons stand out as particularly relevant to my CF care.
First, everyone has something that makes them different. Granted, to a ten-year-old with a new CF diagnosis, trips to the nurse’s office to take enzymes and arriving late to pool parties, having had to sneak in a respiratory treatment, seemed a vastly more significant difference than anything else. But, through transitions to middle school, high school, college, and now graduate school, this lesson has helped me overcome the shame that I once felt over my diagnosis, enabling me to share my diagnosis with people in my life and, ultimately, to better care for myself.
Second, routine is a key component of self-care. In keeping with his career as a research scientist, my father is one of the most rational and disciplined people I know. With his help, I have learned to be routine-oriented, and routine-oriented is good thing for someone who has a laundry list of medicines to take and respiratory treatments to complete.
I’m fortunate to have people by my side to inspire and support me. My creative presentation is a drawing that shows my dad, walking by my side. He has always been there to set a positive example, inspiring me to be consistent in taking care of myself and supporting me in everything I do.
Emily O.'s Artwork
Emily O.'s Achievements