I waited years as a breakthrough CF medication cautiously made its way through clinical trials. I can remember sitting in my kitchen, brimming with excitement, as the box of medication finally arrived on my doorstep, waiting to be taken and for me to begin my ‘new’ life. However, days passed and my new life was slow to come. Months passed and still my new life was yet to reveal itself and now, as I still wait, I continue to be sick while a fog grows over the hopes and plans I once had for my future.
If one morning I was to sit with my future self, with coffee in hand, I think I would empathize with my hope in this medication, but point out that it is not my only hope. Nodding in my direction I would remind myself of the strength and resilience that I nurtured over countless years of sickness and disappointment. The hope is not only in the next medication but in my strength to take ownership in combating the disease as it is today with the current medicines, diet and exercise, as well as, my embedded resilience to keep moving forward until that medication, or cure I have been hoping for finally comes.
I created a photograph of myself grabbing white balloons in each hand. My outstretched hands and raised head are a posture of strength as the white balloons strain upward to symbolize my hope for a future of strong and healthy lungs.
Stephen S.'s Artwork
Stephen S.'s Achievements