Marc E.

Undergraduate Recipient



"In honor of the 25th anniversary of the AbbVie CF Scholarship, choose an event (personal or cultural/historical) from the past 25 years and describe how it has impacted your journey with CF."


The most impactful event that has fundamentally shaped my journey with CF is when I received my first standing ovation. My first standing ovation took place after I was granted my wish from the Make-A-Wish foundation. My wish was to record a CD of my own musical compositions and share it with the community. Further on, I received the opportunity to experience the recording process at a local recording studio and my CD was ready to be presented. A month later, the foundation organized a private concert/CD signing party as a way to present the CD. I performed all of my recordings at my private concert and after I finished, I received my first standing ovation. There was a certain undefeated power that I sensed while this was happening. It was a power that enabled me say to myself, “your life has meaning now, go make it worth something!” The power of that event has given me the confidence to cough out the darkest days and find the joy in living with CF. In all honesty, joy can be an emotion that many living under these circumstances often do not take for granted. We can easily be swallowed by the harmful thought of asking “what is the point of finding joy if my life is short lived?” My first standing ovation has taught me to perceive life through the lenses of optimism and hope in order to experience joy.

 

Marc E.'s Artwork

Marc E.'s Achievements

  • Guest speaker at Pacific Northwest Child Life Specialist Conference. Seattle, WA. (2017)
  • Participant in 16th Annual More Music @ the Moore show under direction of Grammy Award winning jazz musician, Robert Glasper. Seattle, WA. (2017)
  • Guest musician at UW Village Starbucks store location. Seattle, WA. (2017)
  • Volunteer work with Make-A-Wish Foundation Alaska and Washington. (2015-present)
  • Tenor vocalist in Concert choir at Seattle Pacific University. (2015-present)
  • Dean's List, Seattle Pacific University. (Autumn, 2015 and 2016)
  • Guest musician featured in "Well-Strung" show at the Neptune Theatre. Seattle, Washington. (2016)
  • Performed at 35th annual Make-A-Wish Foundation conference in Disneyland, CA. (2015)
  • Cross Country Varsity Letter and Most Improved Award. Bellarmine Preparatory School. (2014-2015). Intramural sports volleyball (2016-present)
  • Pianist and composer. Musician's original work: marcestabrook.bandcamp.com/releases