Sydney D.

Undergraduate Recipient



"As you pursue your dreams of higher education, describe what changes you would like to see in the CF community. What steps would you take to initiate these changes?"


Growing up, we realize that CF is isolating. The physical isolation from others in the CF community comes from health protection for ourselves that is accompanied by frustration and sadness because of the impossibility of face to face connection in the community. With that impossibility, connecting in other ways via internet communication platforms is incredibly valuable, yet I have noticed online platforms made for our community aren't around like in the past. These platforms aren't something medical teams talk about anymore, especially as we grow older. With online platforms, I see communication between us growing again while providing a way to discuss positive things and wellbeing tips, as well as our struggles. I specifically have in mind its potential to educate and provide communication on many topics, especially about having CF and a significant other and about balancing our self-care and physical labor, especially in pivotal life-transitional periods such as college, moving, etc.

I would begin reaching out to CF center social workers and work with them to develop a network among other CF social workers to connect individuals with CF to spread awareness of online platforms for our communication that already exist, but also to encourage the creation of local pages on Facebook and other platforms to initiate interaction online. Through the Disability Alliance on my campus, I would initiate a communication network of people with CF and bring up many topics and discuss how we can make the campus more inclusive for people with disabilities.

 

Sydney D.'s Artwork

Sydney D.'s Achievements

  • Volunteer Art Therapist Assistant through Studio E in Milwaukee and the Epilepsy Foundation Heart of Wisconsin at Froedtert Hospital, WI (8 week program during 2015-2018)
  • Artist selected for exhibition and sales of their Art in the Annual Spring Art Sale in the Grand Ballroom at the MacLean Center, Chicago IL (2018)
  • Created and collectively published a collaborative book titled: Untitled 2017, in the Joan Flasch Artists' Book Collection affiliated with the School of The Art Institute of Chicago (2018)
  • Member and Activist of The Student Advocacy Alliance for Health and Disability at the School of The Art Institute of Chicago (2018)
  • Accepted into Advanced Fibers and Materials Sculpture Undergraduate Program at the School of The Art Institute Of Chicago (2018)
  • Artist of The Month at small business storefront, KEPS Naturals, Sparta WI (2017)
  • School of the Art Institute of Chicago Merit Scholar (2016-2018)
  • GSA (LGBTQ alliance) High School and College club member and assistant coordinator (2015 and 2016)
  • Winner of the Cindy Anhalt Memorial Award for a High School Student Facing severe or terminal medical obstacles with determination for success and dedication in school (2015)
  • Waukesha North High School Empowerment Week Coordinator (2015)